Showing posts with label chronically ill. Show all posts
Showing posts with label chronically ill. Show all posts

Monday, June 8, 2020

What Even Are Chronic Illnesses? They Sound Made Up.

Now you might think that I should have started with a topic like this, as an introduction for people unfamiliar with chronic illnesses in general, but I find catching people's attention requires jumping into the middle sometimes before providing the back story.

There are a lot of people out there in the world who have some gross misconceptions about chronic illnesses: whether they are real, whether they are serious, how treatable they are. Let me assure you that chronic illnesses are very real, that many of them are deadly serious, and not all of them are very treatable.

So What Are Chronic Illnesses?

The National Center for Chronic Disease Prevention and Health Promotion defines chronic illnesses, or diseases, as "conditions that last 1 year or more and require ongoing medical attention or limit activities of daily living or both." CDC

The US National Library of Medicine, through Medline, defines them as "a chronic illness is a long-term health condition that may not have a cure." Medline

Basically, chronic illnesses hit and then stick around. Sometimes you can treat them and go into remission, and sometimes they stick around forever. While the understanding of chronic illnesses is expanding, there is still way too much that the scientific world doesn't know about them. And they are becoming all too common in this day and age.

What Kinds of Illnesses Are We Talking About?

Here is a list (not comprehensive) of some chronic illnesses:

Other examples of chronic diseases and health conditions include:

Also:
  • Asthma
  • IBS
  • Food allergies

Looking at this list, you definitely know people who have one or more of these conditions. And these aren't even all the chronic illnesses that people can get. Many chronic illnesses still don't have diagnoses or proper names, but they still negatively and permanently affect peoples' lives. Many of them can be helped with dietary changes, exercise, healthy sleep patterns, and stress management. Many of them can be helped with medications. But not all.

If you take the time to look up some of these diseases (I left the links to wikipedia intact, just as a launching point into studying; definitely don't just rely on wikipedia), you will find that some commonalities exist between illnesses. Fatigue, pain, lack of sleep, memory failure, brain fog, digestive issues, and mood swings plague those with chronic illnesses. It is a completely different kind of life from the average healthy person. It can be excruciating, terrifying, and totally life altering. While many of these illnesses are preventable, many more still aren't. People can actually go from completely healthy one day to immobilized with pain or sickness the next.

It's easy to find help with some of these conditions, but some of them require medical costs that can quickly become insupportable to maintain. Sometimes it takes years to receive the right diagnosis. Sometimes one can never get medical professionals to take it seriously enough to even start getting the right help. Often, insurance won't cover your illness even with mountains of documentation.

There are so many different nuances that go into diagnosing and caring for chronic illnesses that it's exhausting for many chronically ill people to even do the research to find the right kind of medical help. Because most of us still have to work in order to provide for ourselves, we don't always have the energy to take care of our medical needs, which further drives us down the rabbit hole of poor health. It is terrifyingly easy to have our medical problems take over our lives completely.

Our current system isn't chronic illness friendly. We have to work to afford the medical bills, but because we have to work, our conditions worsen, oftentimes severely. Work also leaves less time to take care of ourselves (you know, getting that exercise in, plus shopping for good foods and getting enough sleep). It's a horrible, vicious cycle. Work places are not accommodating. Schools are not accommodating. Our own families reject us, demanding more of us than we can give.

In Conclusion

Chronic illnesses are very real.

They affect people that you, personally, know.

They don't make anyone less worthy of love and support. In fact, people with chronic illnesses need MORE love and support, not less.

The system we live in needs to change so that people with chronic illnesses don't have to destroy themselves just to live.

Take the time to study up on chronic illnesses, especially the ones that your friends and family have. See what you can do to help them out, especially when they trust you enough to be vulnerable enough to confide in you. Listen to them and their needs. And then follow through with what you tell them. Don't assume that you know how to help them better than they know how to help themselves. Just listen and love.

That's all I've got the energy for right now. I promise I'll work on getting these out more often again. Love you all!

Cheers~


Friday, February 21, 2020

Mainstream vs. Holistic Medicine

As medical bills skyrocket and doctors are unable to provide help with the massive increase in chronic illnesses, more and more people are turning to holistic, natural medicine and therapy, or using a blend of mainstream medicine and holistic medicine. This switch is receiving a TON of backlash from both medical professionals and the common Joe on the street, because holistic medicine has, for a long time, been considered "hokey" or "unscientific." On the other hand, some medical professionals are also switching to a blend of mainstream medicine and holistic options.

Why the switch if there's so much opposition and "scientific proof" against it?

Well, maybe let's look at some pros and cons for both mainstream medicine and holistic medicine. (This is not a comprehensive list of all the pros and cons of both types of medicine, but simply a way to get people thinking about the differences and why people are making some of the choices they are making. This list is also still pertaining mostly to chronic health challenges.)

Pros of Mainstream Medicine

1. It is almost universally accepted.

Being so widespread as it is (and endorsed by our government bureaucracy) means that, when diagnoses are possible, they are more accepted by the general community of medical professionals, even if the diagnosis is incorrect. The fact of the matter is that if you get diagnosed by a holistic practitioner, it is much more difficult to have the diagnosis carry into other fields. But, if you can get a diagnosis recognized by someone in the mainstream  medical community, you are far more likely to get the medical help that you need to continue on your wellness journey.

It also means that you can get doctor's notes and have access to disability help, which are not always as easily accepted from holistic doctors.

2. For most individuals, it does have positive results.

Mainstream medicine covers a wide variety of medications, durable medical equipment, vaccinations and other preventive medicines, operations, and therapies. There's a lot of good, helpful things that come from it! Many people can get what they need just by driving over to the pharmacy or talking to their doctor to get a prescription. Because of this flexibility in resources, many people can get the results they need to carry on healthy, productive lives.

3. It is a field that is constantly growing and changing.

Yay for progress! Scientists and medical professionals are constantly seeking new answers and trying new things, with the positive outcome of being more inclusive and being able to treat more health challenges. One of the best examples of this is how much mental health help has changed over even just the last hundred years. Postpartum depression is more than just a woman "being fatigued from giving birth," learning disabilities are more than just "your child is being lazy." And things like diabetes or anemia don't have to be a death sentence anymore! The growth of mainstream medicine means that even if there aren't answers or helps for the problems you have no, down the road there could be.

4. It's regulated.

While regulation isn't always a good thing, regulation in medication can be pretty handy. Knowing exactly the strength and dosage of medication prevents overdosing and underdosing, and it's easier to modify dosages and medications as needed. Having the medications come from specific places with specific guidelines helps prevents people from tampering with the medications, which means less people dying or having other awful side effects from impure medications.

Regulations in doctors' offices are also handy because it cuts malpractice and patient abuse (it can also cut doctor abuse because abusive patients can get kicked out). Regulations also mean more accountability; people can get away with less crap than before.

5. Generic medication for most of the common illnesses can be really cost efficient.

If you are able to tolerate generic medications, they can be bank-savers. Holistic supplements and remedies, and brand-name medications, can all get pricey, so it's nice to have cheaper alternatives on hand if they work for you.

6. It's insured.

Insurance is SUPER handy when handling mainstream medicine. It cuts prices left and right and can be a powerful defense against overcharges or false charges.

7. It's easily accessed.

It is much, much easier to find mainstream doctors doing mainstream practices than it is to find good wholistic doctors, especially if you live out in the boonies.

Cons of Mainstream Medicine

1. Insurance navigation can hurt more than it helps.

Jumping through hoops to get help can not only be inconvenient, it can be life-threatening. People can go MONTHS or YEARS without getting the right help because of insurance. It's also really hard on people who switch jobs and have to go periods without insurance.

2. It can be really, really hard on the body.

While it's truly a marvel that we have so many procedures and treatments available to us, many of them are actually detrimental to other areas of our body, even while helping one area. Painkillers, for example, can destroy your stomach, liver, and kidneys if taken too much, too often. In fact, most medications can have really nasty side effects that may also need treatment, or they take a long time to reach the right adjustments. Surgeries or other operations, which are definitely necessary for many health challenges, can take a really long time to recover from, and often they give you medications to "speed the recovery" that may help in one way but could potentially be detrimental in the long run.

3. Mainstream doctors are less likely to believe you if you have unusual problems, or are prone to giving up if they can't figure out what's wrong.

I have had way too many doctors tell me that I "look healthy" and that they "can't see anything wrong," even when I haven't been able to digest food for weeks on end or have had crazy headaches. Even when my joints were ALL swollen and tender from my arthritis, because nothing showed up on the testing, I had a rheumatologist dismiss me from her office. I've also had GI doctors give up on me because my testing kept coming back negative, even though I kept dropping weight and everything I ate made me sick.

And while psychiatric medicine has improved by leaps and bounds in even just the last 20 years, many people still struggle to be taken seriously and given the help they need.

4. While knowledgeable, mainstream medicine still has plenty of gaps.

Doctors and researchers don't know everything, even when they sometimes act like they do. Which is fine, really. No one knows everything. We're all learning and growing here. But when mainstream doctors fail to provide answers, a lot of people end up going untreated. Some doctors are awesome and go the extra mile to learn more when presented with new challenges, but often they don't. Mainstream medicine also only covers the things it chooses to cover, even when evidence points to several methods of alternative medicine being effective in certain situations.

My favorite doctors are the ones who blend mainstream knowledge and alternative methods. They work.

5. Often centered more on quick fixes rather than lasting wellness.

While it's great that there is so much available from mainstream medicine, it tends to be more symptoms based rather than wellness based. Rather than focusing on changing behaviors and lifestyles to improve health, a lot of mainstream medicine focuses on taking pills or only using support items. There are, of course, exceptions to the rule (diabetes treatments, for example, generally focus on both medications and lifestyle changes), but for the most part mainstream medicine doesn't focus on making lasting changes.

Pros of Holistic Medicine

1. It's more tried and true than mainstream medicine likes to think it is.

Many holistic practices have been passed down from generation to generation and are more than just hearsay. There are journals, professional texts, and actual documentation for several of these practices. It's always a good idea to take things with a grain of salt, but if you can find actual professionals who are holistic practitioners, you may be surprised about how much sturdy knowledge they actually possess. People actually DO go to school for holistic practicing.

2. There's also a wide variety of holistic practices, which means they can also help a lot of people with a lot of problems.

There's supplements, wholesome food practices, exercise regimes, and so much more that holistic medicine offers! Holistic practitioners that also have doctors' licenses even have access to prescribing the same things that mainstream doctors can, so if your state recognizes holistic practices you don't even lose out on those things (like meds and support items).

3. It can be way easier on the body, especially for people who are extra sensitive.

Holistic medicine is nice because it doesn't come with a million additives that don't do anything except fill space. The people who create holistic pharmaceuticals tend to try really hard to have only the most essential ingredients in what they vend. One, that means you know exactly what you're taking, and two, it means you are less likely to have reactions to things.

There's also more emphasis on easing into different changes instead of doing too much all at once. Holistic practitioners can help you tailor-fit your treatments to you.

4. It's centered on behavior changes, not quick fixes.

Anyone who's studied psychology or is familiar with goal and plan setting can tell you that the most effective life changes we make are the ones that we can make habitual. Holistic medicine makes you confront your lifestyle and make changes to optimize your health. This can include your standard "eat right, sleep well, exercise daily," but it usually goes more in depth than that. A lot of holistic practices center on HOW you view your body and what you can do to create positive experiences with your body. Different things give you energy while other things drain that energy.

Focusing on behavior changes and healthy habits offers longer-term benefits than just "take some Tylenol and get a good night's sleep." While sometimes quick fixes are all you need, for people with chronic health challenges, it's the long game that gives us the most benefits.

5. Holistic medicine focuses on you as a whole, and not just your separate parts.

Many health challenges that people face come from a stacking of different stresses, not just one thing. For example, Irritable Bowel Syndrome (IBS) is most commonly attributed to being over stressed or eating certain foods. So doctors will tell you to go on an elimination diet or do things to relax, both of which are extremely helpful. But they don't necessarily address the real roots of the problem. For instance, it could be from gallbladder failure, life challenges, lack of good bacteria in the gut, lack of enzymes, something else in the body that's wrong that is being released through the gut . . . etc.

My point is that everything in the body affects everything else in the body, so it's important to be able to get the big picture when handling bodily healing.

6. They are used to strange.

Holistic practitioners don't usually get as hung up about unusual symptoms like mainstream doctors do. You are less likely to hear "I have no idea how to help you, so bye" from holistic practitioners. Many of them see it as a challenge to figure out how your individual body ticks and see how to make it right. They approach things like blood tests in a way that allows them to see the whole picture instead of only specific counts.

It is really refreshing to hear "You're not crazy. You're actually experiencing these things. Let's find out why."

Cons of Holistic Medicine


1. In most places, it isn't covered by insurance, or at least not entirely.

Insurance companies get to pick and choose what they cover. Some will cover all holistic practices, some only cover some holistic practices, and most cover none of them. That means more out of pocket expenses, often upfront. It also means the supplements come from out of pocket because they can't be covered as prescriptions through insurance.

In some places, not being covered by insurance can actually make it cheaper because the doctors can set whatever price they feel is right, but by that same token it could also be more expensive if that's how the doctors value themselves.

2. You can't always find holistic practitioners.

Because they aren't part of the popular mainstream, holistic practitioners are few and far between. The more common ones you be able to find would be massage therapists, acupuncturists, yoga instructors, or dietitians (though not all dietitians are holistic). But definitely don't just see any old holistic practitioner just because they're close to you. Just like you would for mainstream medicine, do your research and find out how good they actually are.

3. Mainstream doctors don't always believe anything you get from holistic practitioners, even if there is solid, scientific, documentation.

Mainstream doctors like to say that all holistic practices are hooey, garbage, not worth their time or talents to even consider. That makes it difficult if you've had to switch back and forth for treatments. Even if what your holistic practitioners worked, you may be up against a huge fight if you go back to a mainstream doctor with what you've been given.

4.  Society as a whole can be pretty nasty about it.

People will spit vitriol or disbelief in your face if you are open about doing holistic medicine. It can be really hard to get the support you need to keep going if the people around you don't believe that what you're doing is real and effective. That can make it hard to keep up the life changes you need in order to find wellness.

5. It isn't as regulated as mainstream medicine.

While there ARE organizations that work to regulate holistic medicines and practices, because they are generally not government recognized, it can still be difficult to make sure you are getting only what you think you're getting. The best way to handle holistic medications and supplements is to get help from a holistic professional. They can usually point you toward the more reputable brands.

And so . . .

As I said in my disclaimer at the beginning, this isn't meant to be a comprehensive list of all the pros and cons of both sides of the issue. It's only meant to be a sort of starter pack in understanding some of the differences and why people choose what they choose. I invite everyone who reads this to do their own research--on both sides of the issue. Too often we only seriously consider the side that pleases us the most. But when it comes to health, the best choices are to be open-minded and supportive, whatever someone decides. We can ALWAYS stand to learn from each other.

Once again, sorry for the delay. As winter fades, my writing should pick up again. Love you all!

Cheers~

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Friday, December 20, 2019

Insurance Doesn't Give You Much Assurance

And now for a topic that everybody loves! INSURANCE!

Aha . . . ahahaha . . . ha . . . ha ha ha . . .

*ahem* Anyway . . .

Insurance is a discussion that nobody likes, but let me tell you why it's an especially difficult conversation for people who are chronically ill.

Work Insurance is Great! . . . When It's There
As if jobs and job hunting and benefits weren't fun enough to worry about and think about, for people with chronic illnesses it can literally be a matter of life and death.

"Isn't that kind of dramatic?" you may ask. "It might be inconvenient, but surely it's not THAT bad."

Well, my friend, it really IS that bad.

Chronically ill people have a hard enough time as it is finding and maintaining work because of their illnesses. Making sure they are covered by insurance just makes it all harder. Part time hours, which are more workable with chronic health challenges, don't always provide benefits. Those benefits are almost always necessary for people with chronic health issues to remain on the healthier side of things. Shots, x-rays, inhalers, epipens, insulin, mood regulatory meds, gut health meds, chemo treatments--all of these things get impossibly expensive ridiculously fast. Many of them START ridiculously expensive. Even with insurance. Not being able to have benefits is devastating for anyone suffering with chronic illnesses.

And we need those things to live. Not want. NEED. A person can die from allergic reactions without epipens. Asthmatics can suffocate without the right inhalants. People with lupus cannot function in the levels of pain they experience without proper treatments.

Places that don't provide insurance are exacerbating the growing health crises that our society is facing. Some people CAN'T work more than part-time hours, nor do they always live with people who can cover them with their own insurance, like parents or spouses. If people can't afford to be healthy, their health won't improve and they will be forever stuck in a spiral of being too ill to work but being too poor to not work.

Even When Insurance is There, It's Not Always There Enough
Okay, so someone with chronic illness thinks they can manage, or they have to learn to manage, a full time job and, yay, it comes with benefits!

Oh wait, those benefits don't start for three months, maybe longer.

In the meantime, how does someone with chronic illness survive? Sometimes they can get several months of medications ahead of time, but sometimes they can't. Do the people who can't stockpile meds deserve to have their health and their lives at risk while waiting for insurance to start? What if their illness takes a turn for the worst and they need more care, sooner? And even if they have the meds, there's still doctors visits and therapists that we need to see regularly. How can we pay for that?

State insurance and government aid are great, but not everywhere accepts them or they only accept specific kinds. And they aren't endless wealth banks. As nice as it is to have alternative aid available, it's not all-powerful.

And Then, Insurance Doesn't Even Cover Everything
Insurance not covering everything goes two ways:

1. Deductibles are murder

2. Not all chronic health challenges are recognized or covered by insurance

I don't know that I need to go too far into the deductible problem (although I will in a future post if it requested!), but the second problem is a REAL problem. While chronic health problems are on the rise, there's still enough stigma and not enough information on a lot of them for them to be considered real problems that insurance should cover. That makes it really, really difficult to afford taking care of them. A lot of insurances also don't cover pre-existing conditions, so there's that.

Then, when insurance does cover them, you have to go through a million tests (which you have to pay at least part of if you're deductible isn't met) for them to make sure that the problem you have is, in fact, the problem you have. If you switch insurances in the middle of this process, you get to start it all over again, paying for it all again. When you're already struggle making ends meet.

Finally, if they can't pinpoint exactly what isn't working, or why it isn't working, all that money is just wasted. Sometimes they can give people things to help the symptoms, but the overall problem going untreated means that you're treating symptoms forever. When that happens, they don't always give out prescriptions and instead suggest over-the-counter or at-home remedies that you have to pay for out of pocket. While on the one hand, it might be nice to worry about prescriptions, on the other hand no prescriptions means completely out-of-pocket expenses.

Overall, Insurance and Chronic Illness Aren't Friends
My dream would be to change the medical world to be less about making money and treating symptoms and more about the actual wellness of the people. It shouldn't be a fight to get necessary medical care just to live. Life shouldn't be a long punishment game; it's plenty hard as it is living on Earth without people making it harder on each other. Insurance companies, while making some things about health easier, also created a nightmare with their policies. Jobs, while kindly providing insurance benefits, are also keeping their employees locked in deathly cycles.

Chronic illnesses don't just magically go away if insurances and jobs don't believe they exist. They're still there and they're still a need to be met. Hopefully, by opening up more discussions about the need for better health care, we can come up with some real solutions that actually help people without making other peoples' lives worse.

As always, comments are welcome!

Cheers~

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Friday, December 13, 2019

Chronic Illness and Finding Expression in Media

I'm sorry I didn't get anything out the last couple of weeks! I have been really ill and unable to write (or do a third of the things I wanted to do). But here I am, ready to tackle a new topic related to chronic illness!

A bit of a disclaimer before we start: this is really a pretty big topic with a lot of facets to it. With the time and energy I have, I probably won't be able to do full justice to this topic at this time. However, since I am dedicated to this series of blog posts on chronic illnesses, this is a topic that will most likely feature several times over the course of this blog, and, hopefully, will receive the full attention it deserves. In this post, I will simply do my best to cover as much as I can here.

*metaphorically cracks knuckles* Here we go!

A Word on Media
"Media" is the plural form of "medium." A "medium" is a conduit, a middle ground. In art, "medium" is heard probably more commonly than anywhere else: photography is an art medium, pastel is an art medium, and so on. We tend to talk about "The Media" as an all-encompassing, mostly news and TV oriented feature that gives us information and represents conflicting ideas.

When I speak of "media," I am talking about ALL of the conduits: books, art, TV, video games--all of it.

Media as Conduits of Representation for the Chronically Ill
Overall, there is very little in popular media by way of representing ANY kind of disability, but especially chronic illnesses. Most commonly, you might find cases of dismemberment, blindness, and PTSD, among a few other rarities. While it's great that what gets attention is, in fact, getting attention, it still leaves waaaaaaaay too many disabilities, especially chronic illnesses, underrepresented.

Why is it important to have representation in the media?

Because it allows people to see a reflection of themselves in something, which gives them a new, different perspective on the challenges they're facing or the choices they're making. It also allows people who might not be exposed to those challenges to have a glimpse into the lives of other people, and to see those struggling individuals as real, feeling humans. Think about books: books are well known for being ways of experiencing thousands of different lives different from your own. That is just one example of the power of media to help people understand situations they may never experience themselves. Representation can help you and others build empathy.

But there's more.

Representation is MOST helpful when done in respectful, appropriate ways. Showing chronically ill people as always being miserable, always needing a cure, or always being the focus of an inspirational journey really isn't always helpful. We are NOT all miserable, even in our struggles. There ISN'T always a cure, and even if there is, it's not always possible, plausible, or needed. And while it is totally possible to learn from chronic illness and be inspired by the struggle, most of us are just living ordinary lives around our chronic illnesses.

While we often feel broken, it is actually painful to always be portrayed as broken. We may not be able to live the same lives as other people, but we can still live wonderful, purposeful lives WITH our illnesses. What we need first is for people to love and accept us as we are before trying to say we need to change or be different.

Another facet of media as conduits for representation is the need to show chronically ill and disabled in different lights. It is important to us to see our issues on an extraordinary AND ordinary level.

A superhero with fibromyalgia? How about yes!

An aspiring author with arthritis? How about yes! (I actually know a few people with this particular setup. They are A M A Z I N G~)

A regular house mom with postpartum depression or anxiety? How about yes!

A student who is working through life with chronic fatigue? How about yes!

Very few of us are living extreme lives, so it's good to see us represented in a variety of ways. People can create positive narratives of "these people are living good lives with the problems they live with" instead of heart-wrenching stories of "look how inspirational this person is in overcoming chronic illness" or "they're trapped by this illness and still carry on!" Life with chronic illnesses is what it is. And that's not always a bad or negative thing.


Media as a Tool for Processing and Regulating How We Handle Chronic Illness
There are two main ways that chronically ill people consume media in relation to handling their illnesses:

1. Passive consumption (e.g. watching TV or movies, reading, observing art pieces that speak to us, video games)

2. Active consumption (e.g. cosplaying as characters that we relate to, creating original fiction, creating transformative works, creating art, video games)

Both of these ways are important in the act of processing what we're experiencing.

For myself, I usually participate in passive consumption of media. Reading a book or watching a movie helps me disengage from from my problems and afflictions and lets my subconscious process things without actively having to worry about it. It allows me to escape for a while so I can come back and face things more easily. Personally, I mostly avoid stories that remind me of my problems, but for other people it can be cathartic to read or see how other people handle their same problems, fictionalized or real. It's seeing your life in a mirror without being the one to make the decisions or take the fall. You get the benefit of living vicariously through others while also healing from your pains.

I view active consumption of media as a more head-on approach to processing chronic illness (and other life challenges). To create something, you really have to look at it, acknowledge it, and figure it out. Creation takes your emotions and puts it out to the world, where it has to be looked at and acknowledged. As a child, my sister and I roleplayed an imaginary world where we were able to take all the ugly, awful things that happened to us and turn them and twist them into magical adventures. A lot of what we imagined was pretty dark for a six and twelve year old! But it helped us live in a dark, harsh world without caving in. It can be incredibly empowering to take the things that hurt you or confuse you or just make life difficult, and turn it into something visible, moldable, and that you have control over.

We may not be able to control the situations we're in, but we can control how we handle them through our media consumption. We can find a community we relate to, find self-acceptance and love, and begin to feel a little more human.

On the flip side, immersing yourself too much in media consumption, even if it is healing and helping, can be seriously detrimental. It can be way too easy to be caught up the negative thoughts, feelings, habits, and expressions that you find and express in media. Self-justification ("I see that others have these same problems so it's okay for me to wallow, because it's normal," etc.) or allowing life to fall by the wayside are both really bad things. Making sure that what you put out into the world is put out there in a way that doesn't harm others (commonly done via appropriate tagging) is important.

And so . . .
Media are powerful tools for good, and it's important to be aware of the uses in relation to chronic illnesses, and aware of the negative side-effects that could occur, so that media CAN be used for good. It is important to show people with chronic illnesses in a variety of ways; it helps both the chronically ill and people who aren't chronically ill in understanding themselves and each other. Like any tool, it is how you use it that matters.

Cheers~

Shoutout to my patron Kyle for requesting this topic, and my friend Carissa for helping me find the words for this! You guys rock!

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